Thursday, June 14, 2018

Two Kids, A Cat and 2600 Miles

I didn’t realize how emotional leaving my beloved Alaska would be. Now, before you get all excited, this isn’t a permanent leave. I’m keeping my residency and I will be back. But Bay wants to be an actress/musician and I have to go south with her if she’s going to pursue her dream.

We didn’t take this decision lightly. It wasn’t even a decision really. An agent called, offered her a contract and next thing we knew, we were packing. So the hubby is at work and I’m towing a 27 ft trailer down the Alcan.

Of course, it can’t go smoothly. Straight out of the gate was the weather report of snow at Donnelly Dome.  Frantically packing, I go to hook the trailer to the Durango and the plug won’t fit in it’s slot. Can’t leave without brake lights.  I made a frantic call to my dear friend Elizabeth and her husband heads straight over.

He finally manages to get the plug to fit but notices the tires low. So, off we go and he fills my tires and checks my propane. Lastly, he points out that I need mirror extensions or I’ll be ticketed in Canada. Praise God for Brian.

The first night we make it to Anchorage.

Morning next, off to O’Reilly’s for mirror extensions. They only had one. So, there we sit and wait for the 2nd. It’s nearly 4pm when we hit the road. Joy, oh joy, we are on our way.

So, anyone that lives in Alaska knows that the winters are not kind to the roads. We left Palmer headed North and as the population got more sparse, the roads got worse. Up and down the car bounced, the cats crying, howling and frothing at the mouth. The kids are disgusted by the cat. The cats wandering the car dragging spittle everywhere. It’s so bad that it’s comical. And in the middle of the chaos, the car engine light pops on.

Yep, that red light, staring at me from the dash. And we were still two hundred miles from Tok. That’s when Brian calls. Did I already say praise God for Brian.

So, here we are, sitting in Tok. The red light was benign, but I need an oil change and the back tire assembly has to be replaced. Had it not been for the red light we would have continued on and we most likely would have lost a tire somewhere in the Yukon.

The kids are burning some energy. The cat is enjoying a peaceful day on my bed. I’m blogging. 

Saturday, April 7, 2018

Prom

My daughter is going to prom tonight. No big deal, you say. Prom is a right of passage. Aw, but you don’t know my sweet girl. Beautiful, intelligent and terrified to talk.

Tonight is almost unexpected. It started with a comment I made six or seven months ago. “Bryzy, find a boy to take Bay to prom and I’ll drive her up here.  I just want her to have a normal high school experience.”

Normal high school experience?  Yeah, Bay is homeschooled. Now, before you say anything about awkward homeschoolers you need to understand that Bay has always been painfully shy, even when she went to public school up through fourth grade. Bay is also a singer/songwriter and she performs on stage on a regular basis.

That’s the thing that amazes me the most. Here is this beautiful sixteen year old girl that has difficulty stringing words together in a sentence when talking to strangers but put her on a stage and she comes alive and she can sing in front of thousands of people. And even more amazing...she’s really good.

This is a child that is so terrified to talk that the thought of talking to a stranger on the phone can bring her to tears. This child of mine can barely conversate with people she has known most of her life and sees somewhat regularly. This child can sit in a room of teens for a friend’s birthday party and not talk all night out of fear.

And tonight she is going to prom...with a boy...she has never met. We have seen a picture of him. He is definitely over six feet tall. Bay is 5’4. He is blonde. Kind of cute. And he is willing to go to prom with a girl he is never met.

We know he is into acting. Bay has been in a short film and is headed to L.A. after graduation this May because she has an agent. I don’t know if he knows that. Maybe Bryzy told him to encourage this blind date to prom. Maybe she showed him countless videos of Bay on stage. How Bryzy set it up doesn’t really matter. It’s Bay’s first date and she is excited.

How do I know she’s excited?  It’s six am and my night owl is upstairs getting ready. Clothes are in the wash. She’s showering and packing for a three hour drive to her friends house to go to prom. We don’t leave for three more hours. And she is my procrastinator, never ready on time kid.

So tonight my daughter is going to prom.




Tuesday, October 3, 2017

Paradise

I'm in paradise today. Most people think of paradise as a tropical beach. Feeling the sand in your toes, smell of salt in the air, palm trees swaying in the breeze. Not me.

For me paradise is in the wild. Birch trees swaying in the breeze. Watching the leaves fall to the ground in a slow descent, covering the earth like newly fallen snow. The view of snow capped mountains. The sound of sandhill cranes as the fly overhead. A musky scent in the air as the season prepares to change from fall to winter.

Today I am sitting in my friend's lodge on the Turnagain Arm. I can see the inlet as the water slowly empties back towards the sea. In a few hours the water will come back in with a single wave that will fill the inlet here.  If it was a slight bit warmer the surfers would don their dry suits and head into the inlet in an attempt to ride the boretide.  It's an amazing site.

Earlier I stopped by Potter's Marsh and took pictures of the Trumpeter Swans. They are the largest birds in North America. You'd expect them to be clumsy and awkward and yet they move with amazing grace.  White like most swans but their beaks are black. Ducks break up in pairs and ride alongside the swans. The swans stop every few feet. They dip their heads completely underwater looking for a bite to eat. Smaller swans end tail up searching for food. The Trumpeter swan is so large that its body remains flat on the water in its search for food. In a week or two the swans will move on in search of warmer weather.



Earlier in the year a stop at the marsh provided an opportunity to view salmon, both reds and silvers, spawning as they neared the end of their lives. In the spring, the eggs will hatch and young salmon will head out to sea. Those same little ones will find their way back to the marsh at the end of their lives to spawn. The circle of life, beginning to end, plays out in the marsh each year.


For now I am back at the lodge, sitting in the warmth of the living room rather than the 47° deck outside. As I type this I look up constantly to watch the clouds amble by. Later I will chance a bear encounter as I pick apples. The dog is kenneled and not there to warn me if a bear is in the area, but the area I will pick from is surrounded by an electric fence so I know I'll be safe.

As you look over this land you realize you are a step closer to God. I love the view out of my own window at home. However, it doesn't even begin to measure up to the beauty seen from the Turnagain View Lodge.


Monday, March 2, 2015

Cancer Revisited

I was twenty seven or so when we first found out Mom had cancer.  I remember the day vividly.  I was at work and relatively new at the job.  Mom had found the lump six months earlier.  A mammogram showed nothing so the doctor told Mom to wait six months and they would recheck it.  I told Mom she needed to get a second opinion.  You don't wait six months when you have a noticeable lump.  But no, Mom trusted the doctor.  At the six month check up the lump had grown and she was sent in for a biopsy.  I received the call in the office.  During the biopsy cancer was found.  Her left breast was removed along with quite a few lymph nodes in her armpit.  The cancer was aggressive and had spread.  I was numb.  I can't even begin to picture how that day felt for her.

Mom went on to battle cancer for another eighteen years, ten of those on medication but with no signs of active cancer.  By November of 2012 we were given the news that Mom had only a couple more weeks to live.  The cancer had come back with a vengeance nearly five years earlier. By this point the cancer had spread to her bones, her liver, and unbeknownst to us, her brain.  She had been admitted to the hospital with another bout of pneumonia, her chemo options had run out, and she was sent home to die.

The first thing you need to understand is that Mom and I were the "matter of fact type".  We didn't mince words and we made an agreement to be honest with one another even in difficult times.  We had always spoken openly about what her cancer prognosis meant.  She had taken care of business.  Her funeral had been planned down to every detail.  Her funeral arrangements were made and her urn had been chosen.  She had known from the beginning that she was going to die.  We did not discount that God was the Great Physician and He could heal her if it was His will.  At the same time, we both felt that God had a bigger plan and healing might not have been a part of it. 

So, here it is.  The end is in sight.  EMT's brought her home by ambulance and carried her up the stairs to where she would spend the rest of her life.  She was sick, confused, and in incredible pain.  Pain she had endured for years.

I know people loved her and only wanted the best for her.  Visitors would come and talk about plans for when she got better.  Family would call and tell her to keep up the good fight.  After the visits from friends and family, she would tell me how confused she was,  She would ask why she felt like she did.  Was she going to get better?  What was wrong with her?  And I would sit down and explain to her again how she was dying. I was the voice of reality.  I was the one telling my mother that the end was near.  That she had fought the good fight but that it was okay.  I understood her body was tired of fighting, tired of pain.  I loved her and I was ready to let her go.

Some people accused me of cruelty.  I was insensitive and mean.  How could I say such awful things.  Why couldn't I just give her hope in her last days.  What people don't realize is that they were the ones being cruel.  I know they didn't mean it.  They didn't understand how their false hope was cruel, but it was.  You see, my mother's pain was beyond excruciating.  Every day was a measure in suffering.  Death was not a punishment, it was a release.  And, on the other side of death's door, her Father was waiting for her.  His arms were reaching out waiting to embrace her.  Her healing was meant to happen in heaven, not on this earth.  Only through death would her pain be relieved.

My mother lasted over a month.  She was a stubborn woman and she wanted one last Christmas.  By Christmas week she had become relatively unresponsive.  She was no longer eating or drinking.  She would wince in pain when we moved her but that was the only response we had really had.  Then on Christmas day, Mom suddenly sat up in bed.  The kids and I had been gathered in the room and we were shocked to say the least.  She sat there for a moment, told us she loved us and then laid back down, never to awaken again.  Three days later she took her last breath.

There is a point here.  When a diagnosis of cancer is given, we fight.  We do hold onto hope and we wage the battle of our lives.   Many will win that battle.  At the same time, we have to be able to recognize when the time to fight has passed.  We need to be able to do the loving thing.  We need to assure the one's that we love that they have fought a good and worthy battle.  That we are proud of them, and yet, we know that it is time to let them go.  We have to give permission.
When the pain becomes to much, it is selfish to continue to hold them to their earthly ties.  Love lets them go. 


My mother danced her way into the arms of her Father on December 28, 2012.  No more pain, no more sorrow.  I miss her but I know she is well taken care of.    I can see her in my mind, transformed.  Her face youthful and radiant, her voice raised in song, barefoot and dancing......


Saturday, February 21, 2015

I'm coming back.

It has been awhile since I've been here.  It bothered my mom that I was blogging in a public forum so I moved to a more private setting.  My mom passed away two years ago.  It has taken awhile but I am ready to come back.  I will eventually move a few of my other blogs over here when I am ready.  I know two years seems like a long time but I am still recovering.  Being a caregiver takes a lot out of a person.  Being a caregiver to three brings you to your knees and changes you in ways you can't even image both physically and emotionally.  Was it worth it? You bet. I would do it all again.  I will talk more on that soon.  My son is calling....

Saturday, March 10, 2012

I'm so tired





I am so tired
but it doesn't matter
my daughter needs her feed
it doesn't matter that I am tired
all that matters is her formula is made
her food pump is primed and she is fed

I am so tired
but it doesn't matter
my mothers meds need to be organized and set out for tomorrow
it doesn't matter that I am tired
all that matters is that her medicine is there for her when she needs it
and hopefully it will hold off the pain

I am so tired
but it doesn't matter
the kids have school work that needs to be done
it doesn't matter that I am tired
all that matters is that the kids get the help they need
and hopefully they will get good grades that will help pave a successful future for them

I am so tired
but it doesn't matter
my child's friend needs a ride home
it doesn't matter that I am tired
all that matters is that she is stranded
her father is too drunk to drive and she needs to get home safely

I am so tired

but it doesn't matter
in the end they will not remember that I was tired
all that will matter is that they were fed and cared for
that they were loved
and even when I was tired
I was there

Monday, December 5, 2011

Tuesday, November 1, 2011

Halloween without Food

Halloween has come and gone.  For Bailey the fun is all in the trick or treating.  This is not her first candy free halloween but it is her first food free halloween.  So, what is the point in halloween without being able to eat the candy?  How does a child still enjoy trick or treating without the treats?

As a parent, I have learned to become very creative.  Halloween is actually one of the easier holidays to work around and our work around is mutually beneficial.  Bailey dresses up just like all of the other kids.  She also goes door to door and to the trunk or treats in the area.  However, after Bailey gets all the candy together, she counts it up and Tony and I buy the candy from her.  We get more candy then either one of us needs and she gets to go to the store and buy a couple of her favorite pet shops.  She a dentist dream child and it's a win-win.

The main thing I have learned from this is that my daughter is quite the little shark.  You cannot even begin to imagine how much she tries to charge for candy.  And don't let her know what you really like because she will raise the price on your favorites. lol

Gotta love her!!!!

Tuesday, September 20, 2011

The Death of Zoey



Yes, that's right.  We had another death.  This time the hamster died.  Now I realize that hamsters, gerbils, mice and rats do not live long but I think we set a record.  We got poor Zoey as a baby right after we moved into this house.  That would have been three months ago.  Zoey was barely weaned when we got her and she was so small and so cute.

We had a nice little cage I picked up from a garage sale a couple of summers ago and I held onto it until we moved into a bigger house.  As soon as we moved we headed for the pet store.

Well, a couple of days ago I noticed that Zoey just wasn't acting quite right.  She never played on her ball and she just kind of laid around.  I spent quite a bit of time holding her and I gave Bailey a heads up on Sunday that she was dying.  She looked dehydrated and he tail was all wet.  Turns out she had a hamster disease called wet tail.  Go figure.

So, Monday morning just before Bailey left for band, I looked in the cage and poor Zoey was laying there lifeless.  I pulled Tony to the side and explained the situation and we made a plan for him to tell her right after band as they headed for the pet store.

I know, we are so horrible.  When one animal dies we just replace it with another.  I have to wonder what type of message that is giving her.  I am sure hoping that when Grandma passes, Bailey is not expecting us to go get another one.

At any rate,  Bailey and Tony came home with Xavier.  He is a cute little guy.  Has a bit of a pension for biting though but I am sure he will get better with a little bit of attention.  Zoey was sitting in a box waiting for Bailey to come home.  She help her for a while and she is back in the box.  Tomorrow I am going to look for a good spot in the yard to bury her.

I was a little surprised by Coty though.  He never really paid much attention to Zoey but he was definitely a bit stressed and depressed by her passing.  I didn't really expect that at all.....   

Sunday, September 18, 2011

I Saw a Star



The most amazing thing happened tonight.... I saw a star.  Not like a celebrity star but the kind that you see in the night sky.  "Big deal," you say.  "What is so great about that?"  Well it can be a big deal if you live in Alaska.

It took me a couple years to figure it out.  We went to visit family in Oregon and we were driving towards Medford when I looked into the sky and saw hundreds of stars.  I was so surprised it took me a few minutes to register it.  You see here in Alaska it is light all summer long.  Now I am not talking sun high in the sky light, but never really dark only dusky light.  By mid June you can watch the sunset after midnight. And even though the sun sets, it just barely dips below the horizon so it never gets dark enough to see stars.

In the dark of winter the sun comes up around 11:00 am  it gets dark by 2 in the afternoon.  But even though it is "dark," the snow covers everything and casts the world in an eerie white color.  Take pictures in winter and you would swear you had black and white film.  With all the snow,  I can see the shed in the back yard even at midnight.  So, it never is a true dark and you still can't see any stars.  And on a clear night is definitely around 20 below and I am tucked away in my warm and cozy home so still no stars.  

That leaves a small window between September and October to view the stars in the sky.  I imagine the same window exists between March and April but I will have to try to remember and look.

So, as I said, tonight the most amazing thing happened... I saw a star in the sky.  It was only one star.  And it probably was not even a star, it was most likely Venus.  But that is okay.  It shone so big and bright.  Star light, star bright, first star I see tonight......

Friday, September 16, 2011

The Blessing in my Life



Sometimes I think people see me coming and the run the other direction.  They think, "Oh no.  Not her.  How depressing!"  I know when I talk about how things are going it does not paint a rosy picture.  But I am not depressed or sad.

Granted, yes, my mother does have terminal cancer.  She lives with me and I can tell you that as an adult it is very difficult to live with your parent.  It is not easy to watch her as she struggles everyday.  I am far less than patient with her huge memory lapses and combine that with the mood swings of what I know must be impending menopause and life can be a bit of a roller coaster.  And at the same time, I would not change it for anything in the world.  I love my Mom despite the fact that she causes me to bang my head in to the wall on a daily basis.  If it wasn't for her cancer she would still live 2700 miles away and I would not have the opportunity to spend this time with her.  My children would barely even know her.  Also after moving here my mom started going to church, accepted Christ and was baptized.  I think cancer even at it's worse is worth eternity worshipping at the feet of Jesus.

My son has autism.  Autism does not define him, he defines it.  It is not easy living in the house with an autistic child, but I have learned so much more from him than I would have if he had been a neuro-typical child.  I have learned the eating, sleeping, and mating habits of nearly every animal on the planet.  I fully understand the importance of the opposable thumb.  I have learned the different stages of decomposition and how it affects different birds and animals.  And I have learned that love does not always come in the form of a hug and the words "I love you Mom."  Sometimes love comes in the gift of a freshly skinned squirrel.  Sometimes it is not moving away and flinching at the touch of your hand.  Love can be having a strand of your hair twirled for hours until you feel like it is going to be pulled out of your head.  It is your child watching for your reaction when you watch a movie and copying it just to try to fit in.  Love is not always spoken, it fits in the silence.

Love also comes in the fit of violence.  It is that moment when his body is tensed and shaking from the heavy stress and anxiety and he finally leans against me and sobs.  It is sitting a safe distance away as he rocks and rocks trying to decompress, knowing not to touch him, not to speak, but just to sit and watch.  It is felt during a seizure as you sit next to your child, helpless and all you can do is wait it out.   It is sitting on the floor for hours at a time, spinning a top or what ever the toy of the day is, just trying to break through so that he looks up and notices you.  It is one more visit to the ER and holding him down while the doctor stitches him up.  It is doctors and specialist, therapies, and alternative treatments.  It is practically putting your house in hock trying to find an answer. Love is not always pretty.  It is not always wrapped in wonderful.  It is bare and raw and sometimes it hurts so bad you do not know how you will make it through another day.  I believe that only the parent of an autistic child fully understands that type of love.  And they would not change it for the world.   Coty is amazingly smart.  He is artistically talented.  He takes amazing photos and he is quite musical.  He has an incredible sense of humor.  And he is a very handsome kid.  He challenges me the most but he is so worth it.


Then there is Bailey.  Always my healthy child, nuero-typical in every way and then one day everything gets turned upside down.  Four years of a mystery illness finally diagnosed.  Allergic to nearly all food, tube fed formula though a tube.  And it is okay.  Formula meets her every need.  Her formula is like manna from heaven.  Every vitamin and mineral she needs is right there for her.  Her disease is incurable but it is not terminal.  It can and will be managed.  She is smart and funny.  When she smiles she lights up a room.  From her I have truly learned what it means to be brave.  No matter what, she moves forward.  She meets each challenge head on.  Not only does she survive but she thrives.  She rarely complains.  She serves others and puts the needs of others first.  She does not talk down other people like girls her age often do.  She is not judgmental and she will befriend anyone.  She is innocence at it's best.  I worry about her only in the sense that I worry the world will begin to corrupt her.  Despite the pain she has suffered, she has kept that sweet innocence about her.  God has blessed this child and I imagine he has something very special planned for her.


I am fortunate also to have an amazing husband.  He works hard so that I can now stay home and take care of the family.  When he is home, if I need a break, he has dropped his own plans to allow me to get time out.  He is loving and supportive.  He is my soul mate and my strength.  He was the first person I ever truly felt safe with.  The first person I could be myself with.  He has seen me at my best and he has seen me at my worst and somehow he still loves me.  I have always said that I doubt there are very many men that could put up with me.  Thankfully, he can.


No, I am not sad or depressed.  I have a wonderful life.  What many people see as problems, I see as blessings.  God never promised us life would be easy.  He did say to cast our burdens on Him and He would make our yoke light.  My life is what it is.  These are the daily things that strengthen me and make me a better person.  They teach me how to love in a way that many people will never experience.  They teach me patience and perseverance.  The teach me to turn my face to my Father and to trust in Him.  I know to treasure the moments as they come and to never take a moment for granted.  Life is too short, love fully.

My New Little Chef


My children have never shown an interest in cooking.  On a rare occasion Bailey would ask for us to make something just to wander off five minutes later leaving me in the kitchen on my own.  She just never had time.  When we learned that she could no longer eat, I thought maybe it was a blessing that she had no interest in the kitchen.  I even remember a conversation we had.  She wondered what she would do when she grew up and got married if she still could not eat.  How would she feed her husband and kids.  I told her if her husband was worthy of her, he could cook for himself and the kids.  That settles that.

But lately the oddest thing has happened.  Now that Bailey can not eat, she constantly wants to cook.  She make quesadillas for her brother and his girlfriend.  She helps cook dinner and she serves the food, actually putting the food on the plates for each member of the family that is home for dinner.  Tomorrow she is baking a cake for her Dad's birthday.  Tonight she made chocolate chip cookies.  And all the while she cannot even try a bite.  Not a lick or a taste.  I just don't get it.

If I could not eat, I would not step foot near the kitchen.  I would probably flee the house to escape the smell of food.  And yet, she sticks herself right in the thick of it.  She so much wants to be a part of what she can no longer have.....  


This is how Bailey eats.  There is an IV pole that sits beside her bed.  A bag of formula hangs from the pole and a pump sends formula through a tube that runs from her abdomen into her stomach.  The formula flows in at 150 ml an hour.  That works out to about 12 oz of formula per hour.  The IV pole travels.  During the day she may drag it to the homeschool area to feed while she works or to the tv room while she watches cartoons.  Two days a week we stuff the formula bag and the pump into a backpack and she wears the pump to her classroom in the local elementary school.  As she sits beside her peers, her feed flows giving her the needed nutrients to help her make it through the day.  It takes two hours to get through a meal.  She tried to drink the formula in the beginning but it hurts her throat so the feeding tube was necessary.  

And yet, she steps into the kitchen and bakes cookies.  She moves room to room in the house delivering the cookies that she longs to taste but cannot.  She cooks perfectly seasoned chicken and cuts it up, placing it in tortillas, then adding cheese and frying so that her brother can savor the flavor of a quesadilla.  She serves bowls of what used to be her favorite soup, taking in the aroma, but not able to take in the rest.  These are the same foods that when eaten would cause her so much pain she would not even be able to stand up straight.  She amazes me in so many ways.   

Monday, September 12, 2011

The Wild Side of Alaska


This is an older post that I had posted on a different site.  I figured it might go well here....




We had the most beautiful ride home from Anchorage today. We started around the Turnagain Arm and stopped off at Beluga Point. Surprisingly, we did not see any beluga, but the view was incredible.   Just as we were pulling back onto the highway, we noticed two dall sheep on a ledge above us. It was a momma and her baby.
We then headed back down the freeway towards home. We noticed quite a few cars pulled off at Bird Point so we stopped and found a pod of belugas. They were swimming close to shore and it was fun to see their white backs rolling on top of the water. We must of sat there for a good half an hour watching them.
We pulled out and headed back for home. From there it was pretty quiet until just past the mouth of the Russian River. As we headed around the bend, past the two ponds, we spotted a brownie and her two cubs. They had been eating fish on the far bank of the river. At one point a bird flew over her head and she stood straight up on her back legs. She was so big. Bears are so amazing and majestic. I was definitely glad she was on the far side of the river. Not far behind her there was an eagle nesting in a tree.
We spent about 20 minutes watching her when we noticed the water of the river turn a beautiful deep red color. On closer inspection we could see the river churning with sockeye salmon. They just bubbled to the surface, there were so many of them!
We spent another 10 to 15 minutes and then figured we had better head home. I had stepped back over the guardrail and then stopped to answer a question from some tourist. Suddenly a semi came around the corner. I grabbed the guardrail with both hands and held on as the semi passed just inches behind me. I can honestly say that I hope to never be that close to a moving semi again.
We all loaded back into the car and started the trek back home. About 20 miles down the road we saw a moose on the side of the road. Another 10 miles produced 4 more moose. Mom also thought she may have seen another bear just outside of Sterling but she wasn't sure.
It is on days like this that I feel so blessed to live in Alaska. What a glorious day!

Sunday, September 11, 2011

Life Without Food part 2


Have you ever noticed how every event in life centers around food?  Birthdays, holidays, family get togethers.....it all ends up around the table.  So having a child that cannot eat can be a real challenge.  Okay, the challenge is not mine, but hers.  And sometimes the real challenge lies with the host. Case in point....



We went to a barbecue the other day.  They had hot dogs, hamburgers, chips and snacks,  the whole enchilada.  First the offer Bailey Cheetos.  She kindly explains to them that she is not able to eat.  She is allergic to food.  She lifts her shirt and shows them her feeding tube.  We explain we have formula for her in the car.  "Well,"  they say, "can you have a hot dog?  No, well what about a hamburger?"  We explain she is allergic to meat.  Next they pull out the potato salad.  "Well surely you are able to have potato salad?" they say. (Never mind the bacon they just added to it.  But is bacon really a meat?)  Bailey tells them again that she cannot eat by mouth and she is allergic to pretty much all the ingredients in the potato salad.  So, then they offer her nuts.  Once again she explains that she really can't eat food due to allergies and that she takes her food through her g tube.

So, what happens next.  They offer to blend a hot dog and she can eat it through her tube.  You just have to love it....

And believe it or not, this is not an isolated conversation.  We go through this at nearly all new events we attend.  Heck, my mom lives with us and she is constantly asking if Bailey can eat this or that.  It is so unnatural to meet an individual that cannot eat, that we just cannot wrap our minds around it.  Food is a source of life as well as entertainment.  How can it be possible that the very thing that is meant to sustain us can be poison to her.  It is just so amazingly mind boggling.

Friday, September 9, 2011

You know your Alaskan when....

I wish I knew who to give credit to for this but I don't....





Great Land of Alaska

You Might Be an Alaskan if...

  1. You have ever been asked if you use Canadian/Russian currency.
  2. You have ever been asked if you live in an igloo.
  3. Power outages don't seem to bother you.
  4. You laugh at people who wear coats when the temperature drops to 50°F.
  5. You refer to Lower-48ers as foreigners.
  6. You know what a Lower-48er is.
  7. Spam/pilot bread/tang are part of your regular diet.
  8. You cannot imagine life without duct tape.
  9. It takes only a 15-minute drive to "get away from it all".
  10. The town you live in is "away from it all".
  11. You don't understand what's so exciting about seeing a moose wandering through the middle of town.
  12. A snowmachine/ATV is a necessity, not a luxury.
  13. A snowmachine is something you ride, not something that makes snow.
  14. Dressing up means putting on your cleanest flannel shirt.
  15. You need 4-wheel drive all year long - for the snow and ice during the winter, and the potholes during summer.
  16. Six to eight inches of snow is "a little bit".
  17. It drives you crazy when people pronounce the "l" in salmon or the "p" inptarmigan.
  18. It drives you crazy when people don't pronounce both k's in Knik.
  19. It drives you crazy when people pronounce Valdez "val-dehz" instead of "val-DEEZ".
  20. Anything above freezing is T-shirt weather.
  21. Going outside doesn't necessarily involve the outdoors.
  22. You've ever had to put on long johns, sorrels, snow pants, T-shirt, button-up flannel, light jacket, heavy coat, scarf, face mask, thick hat, and thick gloves just to walk a few blocks to the store.
  23. You think Lower-48ers are wimps for closing schools, businesses, etc., when it snows six inches.
  24. The only way to get to the town you live in is by airplane, weather permitting.
  25. Texas seems awfully small and crowded.
  26. You've had to expain that you don't live on an island in the middle of the Pacific Ocean (some maps show Alaska as an inset by Hawai'i).
  27. You need to drive 150 miles to get to a town that is only 50 miles away.
  28. You think the Rocky Mountains are wimpy.
  29. You don't even think of the Appalachian Mountains as mountains.
  30. An SUV is a necessity, not some sort of status symbol.
  31. You've ever told a Lower-48er that you live in an igloo, wrestle bears, wear animal skins, and eat whale blubber just to see if they believe you.
  32. ...and they did.
  33. You don't wash your car anymore, because the dirt is the only thing holding it together.
  34. You wash your car, and five minutes later it's as dirty as it was before.
  35. You have ever hit a pothole and totaled your car.
  36. "There was a moose blocking my driveway" is an acceptable reason for being late for work or school.
  37. Akutaq is occasionally part of your school lunch.
  38. You know what akutaq is...
  39. ...and you know how to make it.
  40. When you hear Lower-48ers complaining about the harshness of their winters, you know they've got nothing on ours.
  41. You only recognize two seasons: fishing season and waiting for fishing season.
  42. Almost everything you'll ever need can be found at a hardware store or a sporting goods store.
  43. You need an air conditioner when the temperature soars into the 60's.
  44. Your three-wheeler/four-wheeler/snowmachine gets more use than your car or truck.
  45. When giving someone directions, you've said "...and turn right when you come to the giant snow pile..."
  46. You've ever had a snowball fight in the summer.
  47. You've worn an evening gown/suit to the prom along with rubber break-up boots.
  48. "The lights are out" isn't referring to a power outage.
  49. When the lights are out, you go outside and whistle.
  50. And you understand what this means.
  51. You've had a check refused in the Lower-48 because they don't accept foreign currency.
  52. You miss school for a week because the river isn't safe to cross.
  53. You have never seen the summer star constellations.
  54. You can tell how cold it is outside by the frost on the inside walls.
  55. It has been -20°F for two weeks, warms up to 0°F and you call it a warm spell.
  56. You laugh when the media makes a big deal about a magnitude 4 earthquake in California.
  57. You would pay $10 for an old head of lettuce.
  58. You get annoyed with movies/TV shows that have trees around Nome or polar bears in the Panhandle.
  59. You cheered for Binky.
  60. When making hotel reservations, you think nothing about asking if the room has its own private indoor plumbing.
  61. You can't see right to drive unless you are looking through a cracked windshield.
  62. If the airplane bounces only three times, you consider it a good landing.
  63. You know the proper way to pronounce "Nunam Iqua" or "Asaacarsaq"...
  64. ...you know where they are...
  65. ...and you've been there.
  66. You drive 65 miles per hour on a winding icy road during whiteout conditions and not even flinch.
  67. You measure distance in hours, not miles.
  68. Nobody seems to notice or care if you're at a social event wearing a camouflage hunting shirt, Carhartts, steel-toed boots, and a dirty baseball cap and you haven't shaven all week.
  69. Your four food groups are fish, moose, Spam, and beer.
  70. At least half of your friends have hit a moose with their truck at least once.
  71. Your idea of sexy lingerie is an unbuttoned flannel shirt.
  72. You don't need a freezer; you just keep your frozen goods on your porch.
  73. You know at least seven ways to serve moose.
  74. You have aluminum foil over your bedroom windows.
  75. You can see the road through the holes in the floor of your pickup truck.
  76. You leave your car running all night long because you're sure it will be too cold to start it in the morning.
  77. Everyone automatically assumes you're a Jewel fan.
  78. You think the Red Green show is a documentary.
  79. You see nothing odd about barbecuing when the temperature is -20°.
  80. You get tired of people asking if you eat penguins.
  81. You've ever used your snowblower on your roof.
  82. Your brake light is a piece of red cellophane and duct tape.
  83. Your school has ever served fish head soup for lunch.
  84. You know ten ways to prepare Spam.
  85. You listen to one of Jeff Foxworthy's You Might be a Redneck jokes and think "Hey, I've done that."
  86. While on vacation in Hawai'i, you see a beautiful girl in a bikini and picture her in snowpants and a parka.
  87. You wear black steel-toes boots with your suit and tie.
  88. You don't know anybody who doesn't own a snowmachine or 4-wheeler.
  89. You prefer the smell of mosquito repellant over your wife's perfume.
  90. All your clothes came from CabelasLL Bean, or the Salvation Army.
  91. You know at least ten words/phrases of Russian, Japanese, and/or any Native Alaskan language (i.e. Yup'ik, Inupiaq, Tlingit, et. al).
  92. You don't look north to find the north star; you look up.
  93. Your snowblower gets more use than your lawnmower.
  94. You think it's normal for a town to have all its businesses on one side of the road.
  95. You've seen antifreeze freeze.
  96. You've never taken your truck out of 4-wheel drive.
  97. You've needed to use your car's sun visor at noon.
  98. You've ever washed your car in below freezing weather.
  99. You know if you tell your kids to "be home by dark" you won't see them until Fall.
  100. You earn over $80,000 per year but still shop at Walmart.
  101. The only stores in your town that are open on Sunday are the liquor stores.
  102. You've had to explain more than one item on this list to somebody.